Skip to main content

2020: retro

Like most organisations, 2020 was an interesting year at Conn3cted. In this post we reflect on the year that was! It's a girl! In our 2019 retro, we reported that…
Read More

2019: retro

pirate themed christmas party
2019 was a big and fulfilling year at Conn3cted. In this post we reflect on the special moments! There's definitely something in the water In our 2018 retro, we reported…
Read More

PWS and Siblings

Ella and sisters
“Living with someone who has Prader-Willi Syndrome can have a huge impact on families, especially on those with more than one child. At any given time the sibling of a…
Read More

Adolescence and PWS

Ella angel
Ever since Ella was first diagnosed with Prader-Willi Syndrome, I keep finding myself looking back on that long 'checklist' of symptoms/issues/challenges. Here’s a non exhaustive list for you to skim,…
Read More

Childhood / Stage 2 of PWS

ella
Sometimes I feel like, when you’re trying to raise awareness, you’re almost forced to focus on the negative - if you talk about the positive people won’t really get it,…
Read More

Conn3cted Goes Orange!

PWS Awareness Month
Do you know what the most common genetic cause of childhood obesity is? From our experience, many people don’t know that the answer is Prader-Willi Syndrome (PWS). If you're following…
Read More

Orange it Up for PWS

The Conn3cted team 'Orange it Up' at work today for Ella, ahead of PWS Day on Friday 30th May. Please help to raise funds & awareness by wearing orange on…
Read More